Even though L is doing so well there are moments that aren't. Last night he puked his guts up after eating at a friend's house. It was a party so he was allowed to cheat. He's cheated 100 times before with no troubles, or at the most a minor tummy ache cured with a cup of medicine juice. But last night my darling boy, threw up everything he had eaten.
Was it his EG? Food poisoning? Some random virus? I don't know. He's better today but I can't help but worry. Worry about the calories he lost by throwing up, and by not eating much today. Worry that my letting him cheat caused his EG to flare, damaging his small intestines and leading him into a spiral of new allergies and endoscopy's.
Tonight E, my 10 month old is having a hard time going to sleep as she has for the past few months. She has gas. Bubbles in her stomach that I can feel against the flat of my hand as I walk her back and forth across the floor of her tiny bedroom. As I pace I worry. Is it eos? What is she eating that is causing so much gas? What am I eating that is causing this?
It makes me tired. It makes me long for a household full of children whose biggest health challenge is cured by antibiotics and a dose of Tylenol.
Oh how I know this feeling! Some days I would just love to go on a road trip without a cooler full of food, to go on vacation without cooking a week's worth of food ahead of time, to drive through McDonald's, to let B eat school party cupcakes, to not worry about every symptom and what's causing it. I would love to carelessly toss items into my shopping cart without reading labels. *sigh* I hope your little guy is okay.
ReplyDeleteI feel your pain. You are not alone. Although my sons have outgrown most of their food allergies I can't forget the feeling of wondering and worrying everytime they ate somewhere other than home. So many times my kids got sick and threw up after eating somewhere. And then you sit and think and go through everything they ate in your mind trying to figure out what it was. Hang in their and know that you are not alone!
ReplyDeleteIt's a long hard road Trisha - wishing you all the perseverance possible. You're doing a great job. I always try to thank God that my kids haven't got something worse when I start wishing away their allergies. But when you're in the thick of it, it's hard to think in that perspective isn't it?!
ReplyDeleteLoving your blog. Looking forward to looking more into it. Maybe we can share some insight. I may also have things you may be interested in reading on my blog. Emily's Allergies
ReplyDeleteKeep up the great work!
We *used* to be the antibiotics and tylenol kind of family, took it for granted until it was too late. Reality is slowly setting in as he is getting older and becoming aware that his food isn't the same stuff everyone else is eating. The foods he actually wanted to eat, can't eat them anymore. It's a new level (low?) when you hope they place a tube so he can actually hit his calorie count for the day and gain some weight.
ReplyDeleteHang in there! You are definitely NOT alone. :)
Hang in there. You inspire me to make foods that my son, with EE, can eat. I just made your granola bars after weeks of getting up the nerve. I've made and tossed so many things out over the last three years, wasn't sure this would be any different. They are delicious!! And while my son has only nibbled on one, I know this will become a favorite of his in the future as he and his pallette mature.
ReplyDeleteThank you for all the kind words, everyone!
ReplyDeleteThank you all for your kind words! And Mary, I'm so glad you loved the granola bars:) They are a staple 'round here.
ReplyDeleteI'm so sorry. I'm new to this blog and new to the world of food allergies in my kids. I feel your pain in wishing for 'normal'. Until I found your blog, I felt like I was just floating in a sea of confusion. I have so many questions and reading your blog is helping me. Thank you! And good good luck.
ReplyDeleteI'm glad the blog is helping! Feel free to send me an email if you need an extra set of ears or have a specific question:) funkyfoodtrisha@yahoo.com
ReplyDeleteI'm with you on this one. I just want to have normal kid problems again and not worry about food. We are all allergic to foods and it is a daunting task to stay on top of it.
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